FOXG1 Research Foundation

Mission Statement

The FOXG1 Research Foundation (FRF) is the parent-led global organization driving the research to find a cure for every child in the world with the rare neurological disorder called FOXG1 syndrome. Most children with FOXG1 syndrome are severely physically and cognitively disabled and suffer with life-threatening epilepsy. The FRF is dedicated to a cure, as well as finding precise treatments to help every child, while supporting families through this difficult journey.