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FSHD Global Research Foundation
Mission Statement
The FSHD Global Research Foundation was established in 2007 to find treatments and a cure for one of the most common forms of muscular dystrophy, Facioscapulohumeral Dystrophy (FSHD), a highly complex, progressive muscle-wasting disease. It does not discriminate, affecting the lives of men, women, and children from all walks of life. We fund world-class medical research, diagnostics, awareness, and education. We are also committed to complete transparency and accountability in our operations. We undertake a wide range of medical research focused on; slowing this disease, muscle wellness, and muscle technology. The aim of this research is not only to find a cure for FSHD, but to find ways that all people suffering from muscle weakness caused by neuromuscular disorders, muscle trauma and aging will benefit.
Why Donate to FSHD Global Research Foundation?
100% of all cryptocurrency donations will go directly to medical research to find a treatment or cure for FSHD. The Global footprint of this condition is enormous. Worldwide, FSHD affects the lives of an estimated 1 million people, a figure that does not take into account the effect FSHD has on the friends and family of the person affected. Despite being considered one of the most common forms of muscular dystrophy in adults and children there are no treatments and no cure.
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General info
- 79128037614
- AUS
Impact areas
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Health & Medicine
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Technology
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Developmental Disabilities
